Centre for Death & Society logo University of Bath - links to homepage
  text view

 

Links

Below are a number of links to organisations in the UK and abroad which you may find useful.
CDAS cannot be responsible for the content of external websites.

CDAS related links

Mortality

Charities

British Red Cross
Compassionate Communities (Sandwell, UK)
Cruse Bereavement Care

The Foundation for the Study of Infant Deaths
Help the Hospices
National AIDS Trust
Omega
Winston's Wish

Education and research

Afterlife Research Centre
Anomalous Experience Research Unit
The Association for the Study of Death & Society (ASDS)

Bereavement Research Forum

'The Bones Collective' Research Group, The University of Edinburgh
Bristol Cancer Research
Cemetery Research Group, University of York
Centre for Life and Death Studies, University of Durham
Centre for Thanatology, Radboud University, The Netherlands
Compassionate Communities Network (Australia)
Dark Tourism Forum, University of Central Lancashire

Death, Commemoration and Memory Research Group, The University of Edinburgh
Healthtalkonline
Institute of Contemporary Interdisciplinary Arts, University of Bath

Knowledge Tree
The Morgue
Near to Death Experiences
Nordic Network of Thanatology
Social Policy Research Unit, Univeristy of York
Society for the Study of Death (Société d’études thanatologiques)
Unit for Development in Intellectual Disabilities

Other organisations (UK)

The Bereavement Register
British Humanist Association
British Institute of Funeral Directors
Dying Matters
The Cremation Society of Great Britain

Funeral Service Journal
The National Association of Funeral Directors
National Federation of Cemetery Friends
National Society of Allied and Independent Funeral Directors

Other organisations (International)

Death Reference Desk
Fabretti Foundation

FIAT-IFTA
International Work Group in Death, Dying and Beravement
Thanos Magazine

 

Quick links

CDAS related
Charities
Education and research
Other organisations (UK)
Other organisations (International)

Details of all organisations listed alphabetically with link to external website

Please note that CDAS cannot be responsible for the content of external websites.

 

Afterlife Research Centre

The Afterlife Research Centre (ARC) is a research network and virtual forum which aims to generate, disseminate and communicate research into the afterlife through our Programmes. The focus is ethnographic and anthropological, although they also want to explore ways in which these approaches interact with others.

Anomalous Experience Research Unit

The Anomalous Experience Research Unit (AERU) was established in the summer of 2006 to research into the contexts, characteristics and consequences of experiences which suggest anomalous psychological processes and agencies, and exceptional states of consciousness. Although based in the Department of Sociology at York, the Unit seeks to develop interdisciplinary social science research on anomalous experiences.

The Association for the Study of Death & Society (ASDS)

ASDS promotes the study of death in the arts, humanities, social and allied sciences. To this end, the association will:

  • Foster and promote publication, conferences and multidisciplinary networks
  • Support academic professional development
  • Promote high quality, ethical research
  • Shape and influence policy and practice agendas
  • Support the teaching of death studies
  • Promote the widespread recognition of death studies
  • Represent the interests of the membership

Visit them on Facebook

The Bereavement Register

The Bereavement Register is a free service with one simple aim: To reduce the amount of direct mail sent to those who have died and consequently make the passage of bereavement that little bit easier.

topˆ

Bereavement Research Forum

The main purpose of the Bereavement Research Forum is to provide opportunities for the discussion, promotion and development of bereavement research by:

  • Providing a platform to encourage and facilitate future research into bereavement
  • Exploring research issues such as methodology and ethics
  • Disseminating bereavement research findings to a wide audience
  • Promoting the application of research into policy and practice

'The Bones Collective' Research Group, The University of Edinburgh

'What Lies Beneath' is the title that an emerging research group (‘the Bones Collective’) at the University of Edinburgh has given to a project regarding the significance of human bones. The longer term aim of the project is to develop a large interdisciplinary research programme.

Bristol Cancer Research

Bristol Cancer Research is a virtual cancer research network that transcends affiliations and institutions in the region. We share the common purpose of improving the prevention, diagnosis, treatment and lives of members of our society who either may develop or have cancer. We also share the common understanding that only through performing the highest quality research, will we be informed enough to able to progress with confidence in tackling the challenges of cancer.

The British Humanist Association

The British Humanist Association (BHA) represents the interests of the large and growing population of ethically concerned but non-religious people in the UK. Committed to human rights, democracy, equality and mutual respect, the BHA works for an open and inclusive society with freedom of belief and speech, and for an end to the privileged position of religion - and Christianity in particular - in law,education, broadcasting and wherever else it occurs.

Humanist Ceremonies is the BHA's network of accredited celebrants across the UK who conduct personal and dignified funeral and memorial ceremonies for non-religious people. Our celebrants come from a wide variety of backgrounds. We work closely with funeral directors and are reliable, sensitive and professional. The ceremonies we conduct uniquely honour the life of the deceased and are moving, sincere, fitting and helpful.

The British Institute of Funeral Directors

The B.I.F.D was formed in 1982 by a group of highly experienced, qualified Funeral Directors to provide an organisation which cared for professionally qualified individuals working within the Funeral Industry.

The Institute's main aim is to promote education services within the profession.

Membership has now grown to over 1600 members and students.

topˆ

British Red Cross

The British Red Cross are a volunteer-led humanitarian organisation that helps people in crisis, whoever and wherever they are.

They have developed an assembly kit on the subject of bereavement which is part of the British Red Cross humanitarian education programme. It is for educational use and provides all teachers need to plan a school assembly about bereavement. A 10 minute introduction for teachers is available from their website, just click on the logo opposite.

Cemetery Research Group, University of York

The Cemetery Research Group (CRG) was established at the University of York in 1990, when a consortium of interdisciplinary academics successfully applied for Economic and Social Research Funding for research on local authorities and cemetery conservation. Since that time, research on cemeteries has continued at the University principally by Julie Rugg, who was appointed by the CRG in 1991 and continues cemetery work under the aegis of the Centre for Housing Policy. Funding for cemetery research has been raised from the Economic and Social Research Council, local authorities throughout the UK and the Confederation of Burial Authorities. The work of the CRG is informed by an understanding of international and UK cemetery history from around 1740 to the present. Research and publications also benefit from strong links with the cemetery management profession.

Centre for Death and Life Studies, University of Durham

The Centre for Death and Life Studies exists to foster and conduct research into life-values, beliefs, and practices that relate to living and dying. It seeks to encourage and facilitate interdisciplinary approaches wherever possible between the humanities, the social and life-sciences and medicine. It also benefits from the support of Durham University's Institute of Advanced Study.

By kind permission of the British Cremation Society, the archives of the Cremation Society of Great Britain are lodged in Durham University Library and are available for scholarly research.

Centre for Thanatology, Radboud University, The Netherlands

The Centre for Thanatology at the Radboud University Nijmegen in the Netherlands conducts research into the socio-cultural and religious aspects of death, dying and bereavement. The Centre also facilitates commissioned (applied) research, consultancies, training and education.    

topˆ

Compassionate Communities (Sandwell, UK) End of Life Care

The aim of the website is to provide a resource for anyone coming to terms with end of life of a partner, family member, friend – indeed anyone. The site offers inspirational stories from real people, practical advice, links to local communities and ideas for further exploration. The charities objectives are:

  • Stimulate community support for people at the end of life
  • People able to live their last days at home with family and friends in the place of their choice
  • Carers and family feel supported by their community
  • Reduce pressure on statutory services

Compassionate Communities Network (Australia)

The Compassionate Communities Network began after the 1st International Public Health and Palliative Care Conference in Kerala, India in 2009. A number of like-minded people came together and began collaborating to develop a network here in Australia.

The Compassionate Communities Network is open to everyone who is interested in social approaches to end of life.

Visit them on Facebook

The Cremation Society of Great Britain

The Cremation Society of Great Britain, a registered charity (not conducted for profit) was founded in 1874 by Queen Victoria's surgeon, Sir Henry Thompson. The Society is the pioneer of cremation in Great Britain and provides an information service to anyone in need.

Every year the Society organises an annual conference and trade exhibition which attracts delegates from here and overseas covering the whole spectrum of the cremation movement and the death-care profession.

Cruse Bereavement Care

Cruse Bereavement Care exists to promote the well-being of bereaved people and to enable anyone bereaved by death to understand their grief and cope with their loss. The organisation provides counselling and support. It offers information, advice, education and training services.

Registered charity number - 208078

Dark Tourism Forum, University of Central Lancashire

Since its launch in September 2005, The Dark Tourism Forum has become the premier online Academic Research Facility for the subject of dark tourism. The Dark Tourism Forum consists of resources, discussion and links that revolve around the various subsets of dark tourism. These include holocaust tourism, slavery-heritage tourism, prison tourism, cemetery tourism and battlefield tourism.

Visit them on Facebook

Death, Commemoration and Memory Research Group, The University of Edinburgh

The Death, Commemoration and Memory (DCM) Research Group is a virtual research group dedicated  to the academic study of Death, Commemoration and Memory. It is based within the School of Arts, Culture and Environment at the University of Edinburgh. Founded in 2008, it provides a forum for postgraduates and staff whose research engages with any aspect of the Group’s remit, attracting junior and senior scholars from a variety of academic disciplines.

topˆ

Death Reference Desk

Geographically dispersed but unified with dark inside, we are two librarians and one professor of death and dying practices. Here we combine our expertise to inform the casually interested and morbidly curious alike about All Things Death: the bizarre, the batty and the beautiful, from interesting blogs and recommended books to commentary and analysis of death in the news.

We scour the web and beyond for death: Good death. Bad death. Interesting, bizarre, nuanced death. Culturally and politically charged death. Scientific death and the ideas over time that have gripped the human heart and mind regarding what it is and what happens thereafter.

We don’t take your money. As such, and as we tend to suffer full-time jobs and part-time lives, we cannot tackle your in-depth death research, nor will we track down obituaries or death dates for Gramma and Gramps. Your local library is the best place for that.

We also don’t aim to shock-and-ugh with content nor muck in excessive gore and brutality. Gross. That said, we are dealing with death, and we may have different ideas about what’s gruesome and gratuitous. While we aim for respectful, scholarly treatments of death and dying topics, please be advised that some of the content here or linked from here may offend you.

Visit them on Facebook

Dying Matters

In 2009 the National Council for Palliative Care (NCPC) set up the Dying Matters Coalition to promote public awareness of dying, death and bereavement.  It is chaired by Professor Mayur Lakhani who is a practicing GP; the work of the Coalition is supported by Professor Sir Mike Richards, National Director for Cancer and End of Life Care and by the NCPC’s Board of Trustees.

Members include organisations from across the NHS, voluntary and independent  health and care sectors (including hospices, care homes, charities supporting old people, children and bereavement); social care and housing sectors;  a wide range of faith organisations; community organisations; schools and colleges; academic bodies; trade unions; the legal profession and the funeral sector.

The Coalition’s Mission is “to support changing knowledge, attitudes and behaviours towards death, dying and bereavement, and through this to make ‘living and dying well’ the norm". This will involve a fundamental change in society in which dying, death and bereavement will be seen and accepted as the natural part of everybody’s life cycle.

Fabretti Foundation (Italy)

The Fabretti Foundation, founded in 1999, is a centre for research in death and dying in Italy

It fosters cutting edge, humanities research and is interdisciplinary in nature. It is the Italian reference point for those interested in thanatological research.

FIAT-IFTA

Federation Internationale des Associations de Thanatoloques (FIAT) International Federation of Thanatologists Association

The Federation exisit to promote international understanding and goodwill among the world’s funeral service professionals, to offer a platform for the exchange of professional views and information and to achieve uniformed Standards, rules, regulations and treaties for the cost efficient international repatriation of deceased individuals.

topˆ

The Foundation for the Study of Infant Deaths

The Foundation for the Study of Infant Deaths is the UK's leading baby charity aiming to prevent unexpected deaths in infancy and promote infant health. FSID fulfils these aims by funding research, supporting families whose babies have died suddenly and unexpectedly, disseminating information on infant health professionals and the general public and working with professionals to improve investigations when a baby dies.

Funeral Service Journal

First published in 1886, the FSJ is a lively, colourful monthly magazine featuring news items, mortality figures for te UK and Ireland, regular features, and the most comprehensive classified advertising section in British funeral directing. For advertisers, the magazine is the best way to reach funeral directors, and for funeral directors it is the best chance of keeping up to date with events in the industry.

Healthtalkonline

Healthtalkonline.org is the award-winning website, run by the DIPEx charity, of people’s experiences of health and illness. Recorded and filmed interviews led by researchers at the University of Oxford enable everyone – patients, friends, family, carers and healthcare professionals – to find our more from other people’s experiences. These include ‘Living with Dying’, ‘Bereavement due to Suicide’ and life-threatening conditions such as cancer, stroke, heart disease and HIV.

Help the Hospices

Help the Hospices is the national charity for the hospice movement, founded in 1984 by Anne, Duchess of Norfolk.

Help the Hospices’ vision is of a world in which everyone at the end of life has access to the best possible care. Our mission it to help hospices ensure that the best possible care is provided to all those affected by terminal illness.

Institute of Contemporary and Interdisciplinary Arts
University of Bath

Based on campus at the University of Bath, ICIA present a mix of performances, exhibitions, talks, workshops and classes open to the general public alongside our student community, ICIA are based on campus at the University of Bath. ICIA is an academic research centre commissioning new arts projects regionally and nationally, and training for artists, arts professionals, academics and educators with an emphasis on interdisciplinary practice.

topˆ

International Work Group in Death, Dying and Bereavement

The International Work Group in Death, Dying and Bereavement (IWG) is an invitational international organisation that seeks to advance and nurture the development of the field. Further, IWG provides leadership and support to those involved in death education, in the care and support of the terminally ill, in the care of the bereaved, and in promoting research, evaluation, application, and policy development in these areas.

The IWG accomplishes its mission in two ways. First, it conducts regular meetings at which leaders in the field can, in an atmosphere of shared collegiality, work and study together. Second, by doing so IWG promotes both the acquisition of knowledge and the promulgation, evaluation, and testing of assumptions that can then be disseminated to others, thereby serving a catalytic role.

Knowledge Tree

An education and research consultancy run by Mary Curtis, an active Registered Practitioner of the Higher Education Academy. Her particular interests and expertise lie in the following; Medical Ethics, Medical Sociology, Death and Dying, Arts and Humanities in Medicine, History and it’s Relationship to Knowledge.

The Morgue

The Morgue is Kansas City Kansas Community College's premier author subject index to English language journals within the field of Mortuary Science.

The need for a computerised indexing system to support students of Mortuary Science has been apparent for many years. The Morgue attempts to provide students, scholars and researchers with an on-line tool specifically targeted at the literature in field of Mortuary Science.

Copies of articles can be requested from the college for a small fee.

Near to Death Experiences

Established by sociologist Una MacConville in 2011, this site is intended to bridge the gap between researchers and people who have an interest in near to death experiences and who may also have had personal experiences of these experiences.

This site provides updates on recent and current research on these experiences and provides a platform for sharing information about near to death experiences.

Mortality

A foremost international, interdisciplinary journal that has relevance both for academics and professionals concerned with human mortality. Mortality is essential reading for those in the field of death studies and in a range of disciplines, including anthropology, art, classics, history, literature, medicine, music, socio-legal studies, social policy, sociology, philosophy, psychology and religious studies. The journal is also of special interest and relevance for those professionally or voluntarily engaged in the health and caring professions, in bereavement counselling, the funeral industries, and in central and local government.

National Aids Trust

As the UK's leading independent policy and campaigning voice on HIV and AIDS, the National Aids Trust influences attitudes, behaviour and decisions that have an impact on the lives of people affected by, and at risk of HIV and AIDS. NAT is involved in research and education, campaigns for change and raises awareness through the media, resources and events.

The National Association of Funeral Directors

Established in 1905, the NAFD represents the interests of the entire spectrum of funeral directing businesses – including independent businesses, the Co-operatives and major funeral groups – who conduct in excess of 80% of UK funerals.
Member companies range from small family businesses to Public Limited Companies and Co-operatives, conducting in excess of 500,000 funerals every year.
The NAFD takes the lead in education and is also responsible for initiating professional development programmes.

topˆ

National Federation of Cemetery Friends

The Federation was established in 1986 mainly from London based groups and now has members from Scotland to Cornwall. The cemetery care organisations have now spread to an international level such as the Association of Significant Cemeteries in Europe.

Members of the Federation meet annually for the AGM and the venue varies each year with a mix of provincial and London based locations with the added incentive of a guided walk around the local cemetery either before or after the formality of the AGM. Members welcome the opportunity to network, visit stands of other societies and learn of updates on current issues such as monument safety or the proposed new burial laws. New members are made very welcome and often long term contact and friendship is established with other Friends' groups often resulting in exchange visits to their local cemeteries.

National Society of Allied and Independent Funeral Directors

The National Society of Allied and Independent Funeral Directors (SAIF) is a trade association whose members are all independent funeral directors. The funeral service they offer is not part of a national or international conglomerate or chain, but is privately owned and managed. In fact, a large proportion of our members funeral homes have been run by the same family for generations.

Nordic Network of Thanatology

The Nordic Network of Thanatology (NNT) is a network primarily for scholar and practitioners working with the social sciences, the humanities and health care area. The purpose of the network in thanatology (broadly understood):

  • To unite and create synergies between scholars and practitioners working within a variety of disciplines, traditions and fields of study in relation to death, dying and bereavement in the Nordic countries.
  • To render visible the many forms of research and other initiatives within the field of thanatology in the Nordic countries.
  • To provide a forum for interdisciplinary discussion, exchange and collaboration within the Nordic countries.
  • To strengthen existing bonds and build new bonds between individuals and institutions working within the field of thanatology in the Nordic countries.
  • To promote an awareness in the academic community as well as outside of the importance of studies of death, dying and bereavement as a legitimate field of research.

Omega

Omega is a charity supporting unpaid carers, former carers and the bereaved, specialising in helping those who look after people with long-term / life-limiting conditions. Omega facilitates group sessions, runs social activities and encourages peer support. We work with clinicians, Third Sector organisations, care professionals, expert advisors, businesses, volunteers and others, to achieve tangible improvements in general care and palliative care.

Social Policy Research Unit
University of York

The Social Policy Research Unit has an international reputation for excellence in research in social policy, especially health and social care, poverty, social security and employment.

A recent project looked at 'Financial consequences of the death of a partner.' To read an abstract of the project, click here.

topˆ

Society for the Study of Death (Société d’études thanatologiques)

This Swiss organisation, based in Lausanne, organises events and seeks to form networks between individuals, organisations and institutions interested in the study of death.

Thanos

THANOS Magazine is the official publication of FIAT-IFTA - International Federation of Thanatologists Associations - Fédération Internationale des Associations de Thanatologues.

THANOS magazine is published in English, French and Spanish and is mailed three times yearly. Occasionally articles appear also in the Chinese and Japanese language.

Articles look at issues facing the funeral services globally as well as country specific topics. Events listings and organisational updates are also given through this publication.

Unit for Development in Intellectual Disabilities

UDID‘s mission is to enhance quality of life and quality of service provision for people with intellectual disabilities and their families and carers via an integrated programme of research, education and practice.

One major research interest of the Unit is death and dying, and a number of research projects are currently underway.

Winston's Wish

Winston's Wish helps children rebuild their lives after the death of a parent or sibling, enabling them to face the future with hope. We offer practical support and guidance to families, professionals and anyone concerned about a grieving child. We want children to avoid the problems that can occur in later life if they are unable to express their grief.

topˆ


sps logo

Department of Social and Policy Sciences, University of Bath, Bath, BA2 7AY, UK
Tel 01225 386949 | Email cdas@bath.ac.uk
Last update: 4 October, 2011
© 2006 University of Bath