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EDI in health and social care research: general resources

Here you will find links to useful toolkits, guidance, articles, and training to support embedding EDI in your health and social care research.

Toolkits

NIHR RSS Equality, Diversity and Inclusion Toolkit

NIHR RSS Community Engagement Toolkit

South Asian Dementia Pathway Toolkit (ADAPT): an online toolkit of enhanced interventions

The Centre for Ethnic Health Research: Equality Impact Assessment

AMRC Equity, Diversity and Inclusion Resource Hub

NIHR Research in Community Settings Toolkit To access the Toolkit you will need to create an account. When accessing the platform for the first time you are asked to confirm that you are working with the NIHR (or involved in studies supported/funded by NIHR).

The Inclusive Research Hub is a living resource that was developed in response to growing calls for research to be more equitable, inclusive, and intellectually rigorous.

Guidance

NIHR: A Practical Guide to Being Inclusive in Public Involvement in Health Research - lessons from the Reaching Out programme

NIHR: Improving inclusion of under-served groups in clinical research - Guidance from INCLUDE project

NIHR INCLUDE Guidance

Randomised trials and how to recruit and retain individuals from ethnic minority groups – practical guidance to support better practice

NIHR Guidance on co-producing a research project

NIHR Co-production in action

NHS England Guidance - Increasing diversity in research participation: A good practice guide for engaging with underrepresented groups

NIHR Learning for involvement: resources and training about public involvement in health and social care research

The Association of the British Pharmaceutical Industry (ABPI) and the Association of Medical Research Charities (AMRC) - Achieving inclusivity in clinical research

Maximising the Power of Public Contribution to Research: This document was created by the Consortium to Research into Individual, Interpersonal and Social influences in Pain's (CRIISP) public involvement group. It presents key messages and recommendations from the groups experience on how to successfully define, integrate and maximise the impact of public contribution into research grant applications and throughout the research process.

Frameworks and strategies

NIHR Race Equality Framework

INCLUDE: Ethnicity Framework

INCLUDE: Socioeconomic Disadvantage Framework

Equality, Diversity and Inclusion Strategy: BSW Integrated Care Board (ICB)

Training

The Centre for Ethnic Health Research training opportunities:

Effective community engagement

Increasing diversity of populations in health and social care research

Cultural competence

Articles, blogs and videos

Articles

What would it take to meaningfully attend to ethnicity and race in health research? Learning from a trial intervention development study

Tackling racism in UK health research

Evaluating a tool to improve engagement and recruitment of under-served groups in trials

Reports

Demand Diversity: Exploring attitudes towards clinical research among people from different ethnic groups in the UK

Videos

Diversity in Research Participation: why it's important

Voices for Change Toxic Corridors video poem. The powerful poem, entitled ‘Toxic Corridors’, was written and performed by author and gospel literary evangelist Kwabena Kimathi. It features NIHR public contributors André Tulloch and Danté Grant and explores the racial inequalities that exist in healthcare, and the interweaving issues of health, healing and spirituality. Find out more from the NIHR.

Why EDI?

Cultural competence and inclusivity

Talk delivered by George Gumisiriza PhD Candidate | Centre for Death and Society (CDAS) Black History Month 2024: Racism, Death, Restoration: The First Black Footballer, Arthur Wharton (1865-1930) A University of Bath login is required to access talk.

Blogs

NIHR Blog by Professor Mala Rao OBE: Race equity in health research - Good for the public and the workforce

NHS England Blog by Dr Natalie Darko: Not ‘hard to reach’ – increasing diversity in research participation

Pharma Times: Research resolutions Do one thing differently in 2025 to address the diversity challenge

Local community groups who can support you with involving the public in your research

Groups supporting health and social care service users

Healthwatch BANES

About Champion for people who use health and social care services, make sure that those running services, put people at the heart of care. Want to understand the needs, experiences and concerns of people who use health and social care services and to speak out on their behalf. Ensure that people’s worries and concerns about current services are addressed.

Contact details Healthwatch BANES website

Healthwatch BANES email

Groups supporting third sector organisations

3SG

About 3SG is a membership network of over 190 charities, social enterprises and community groups in Bath and North East Somerset (BaNES).Aim is to raise the profile of our members, and partner companies they work within, provide 1-1 support and give them a chance to influence local strategic decision making.

Contact details 3SG website

3SG email

Groups supporting ethnic minorities

Chinese Community Wellbeing Society

About Supports the health and social care needs of Chinese people and their families in Bristol and surrounding area. Aims to break down the isolation suffered by chinese women and their families as a result of language and cultural barriers.

Contact details Chinese CWS website

Chinese CWS email

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